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Let Me Explain Something To You

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Facts:

  • I am disabled, despite the fact that I look fine
  • When I was in middle school, I couldn’t even walk up and down stairs without crying because my joint pain was so severe
  • my knees used to dislocate multiple times a day, and through my tears I popped them back into place myself
  • I still can’t really kneel properly without fear, and I actively work not to slap people who thinks its funny to squeeze my knee caps
  • Up until Junior year, my friends and teachers and sometimes family thought I was a hypochondriac or lying for attention
  • I am grateful that I have type 3 and not a different form of EDS
  • While it could have been a lot worse, and I function pretty well, these symptoms get really bad sometimes
  • I have 15 of the symptoms listed, and several that aren’t.
  • EDS symptom lists explain how I’m not crazy, and I’m not over-exaggerating
  • I don’t think about the fact that I’m disabled until I realize normal people don’t deal with these symptoms
  • While I don’t often use my 504, and I like to pretend I don’t need it , I really do need certain accommodations
  • I missed so much school my junior year(40 days), that my Math teacher told my class I had AIDS. She was joking.  But the rumors circulated. It was awful.
  • I used to wish I had cancer or a well-understood disease, so people would respect what I was going through instead of spreading rumors that I was faking or skipping
  • I missed 80/180 days of school my senior year
  • I’m insecure about this, because people act like I’m getting away with something or getting undeserved special treatment, even though I deal with a ton of physical pain others will never experience
  • I do not have a “Golden Ticket”; I’m in constant fear of failing my classes because of lack of attendance/late work
  • You would NEVER KNOW from looking at me what my body puts me through on a daily basis. Don’t judge people. You have no idea what they are going through  by their appearance or even their behavior.
  • There IS such thing as a brave face.
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